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Heather Spohr
Heather Spohr
Inside the interview

Named Best Mommy Blogger of 2009 by thebump.com, Heather Spohr is a philanthropist and writer of the blog The Spohrs Are Multiplying. The blog first became popular as she detailed her family's experiences dealing with a high risk pregnancy, an extended neonatal intensive-care unit (NICU) stay for her daughter, and the difficulties of caring for a premature baby. Following the unexpected passing of her 17-month-old daughter, Madeline, in 2009, Heather continues to chronicle her family's story as they journey through grief. She has given a voice to families who have suffered the devastation of losing a child.

A fervent supporter of the March of Dimes, Heather spoke before more than 10,000 people at last year's March for Babies event in Los Angeles after her family team collected more donations than any other in the nation ($100,000+). She is also the co-founder of Friends of Maddie, a charitable organization that supports the families of critically ill babies in NICUs. She has spoken out for the rights of families at numerous conferences, on CNN, and before members of Congress. She currently lives in Los Angeles with her husband, Mike, and newborn daughter, Annabel.
Heather and Maddie
Heather and Maddie
Mike, Heather, and  Annabel
Mike, Heather, and Annabel

Related information

Please read our disclaimer regarding this interview.

Interview With a Mom Surviving Loss: Heather Spohr

Heather Spohr always wanted a little girl. Despite a rough pregnancy and a premature birth, her wish was granted when her daughter Maddie was born. But the Spohr’s lives changed dramatically on April 7, 2009 when baby Maddie came down with a severe respiratory infection and died unexpectedly. Her death sparked an outpouring of support for the Spohr family. Read our interview with Heather one year after Maddie’s death. Learn how she copes with the loss of her daughter and how the support from friends she’s never even met gives her strength.


Tell us about Maddie.

Madeline was the happiest child I have ever met. She had a smile for everyone, but she saved her biggest smiles for her family. Her personality was enormous and her laugh was contagious. She loved to play with her dog and dolls, and banging on her mini piano was one of her favorite things to do. Her other favorite thing was snuggling with me and her dad.

What is one of your favorite memories of her?

My favorite time of day with Maddie was the mornings. I am not a morning person, but she was. She'd wake up and lay there quietly for a bit. Then I'd hear her start whispering "hi" over and over again. As soon as she saw me, she'd sit straight up and say "hi" really loud, and then lean toward me for a hug and a kiss.

What was your family life like with Maddie?

It was fantastic. I never thought I'd want or even enjoy being a stay at home mom, but being with her was amazing. I couldn't believe that it was my job to care for this amazing child. She brought not only my husband and me so much joy, but our extended family and friends as well. Maddie was the first baby in many of my friendship circles and she was just doted on by everyone.

What has this past year been like for you? How do you make it through the toughest moments?

This last year has been very surreal. I still can't believe this is my life. I can't believe I will never see my daughter grow up, or hear her voice or laugh ever again. There are days that are so hard I can hardly breathe. I get through those days because of 2 things — my 2 daughters. I survive because if I gave up, it would be disrespecting Madeline — she lives on through me and her dad. And I survive because I have Maddie's sister Annabel. Annabel has saved my life in so many ways.

What makes you keep blogging?

A few things. The first few reasons are selfish. I want people to remember my daughter. I want her name to be recognized. I want her to make a difference. I blog to get my feelings out there. I want people to see that grief is messy and difficult and you have horrible thoughts and desires. It isn't something you ever get over. Grieving is a life-long process. In the course of blogging for myself, I started to receive emails, hundreds of them, from other grieving parents, aunts, grandfathers, etc., thanking me for what I was writing. They told me that my words made them feel less alone, or helped them understand what their sister/friend/daughter etc. was going through. So now I blog for not only myself and my daughters, but for the other families walking this road.

Within days of Maddie's death, you and your blog followers donated over $20,000 to the March of Dimes. What do you think that says about the kind of support that moms really have through the blogosphere?

It's really amazing. Detractors of the Internet and the blogging community are so quick to jump on the bad things, but I always point to the support my family received. Grief is a very lonely and isolating thing, but I seriously shudder to think how lonely this life would be without the support and love we've received from the Internet. In total, over $100,000 was raised in my daughter's name. That is amazing.

You were involved in the March of Dimes because Maddie was born premature. Can you tell us a little about your involvement with them now?

I continue to be a huge advocate for the March of Dimes. We credit the medical advances their funding made possible for the 17 months we had with our daughter. My husband and I always said we would do everything we could to give back to them, and our desire to do that has only grown stronger since Maddie passed away. I am a family volunteer, and I speak on behalf of the March of Dimes whenever I am offered the opportunity.

In addition to blogging, what other things do you do to help you cope with the loss of your daughter Maddie?

I go to therapy. I resisted it at first, but now that I go it has made a big difference. I also do a lot of writing that I never put on the blog. I have so many emotions and traumas that I have to work through. I have a lot of post-traumatic stress and it's very messy and confusing. I also use photography as a stress release. I take pictures of the things that I think Madeline would have loved, and then I talk to her about them. Someday, I'll be able to show those pictures to her little sister.

Speaking of Annabel, tell us about her and what affect her birth has had on your family.

Annabel is our savior. After Madeline died, we had no idea what we were going to do, how we were going to go on with living. When I became pregnant with Annabel, my family had hope again — a reason to go on. And now that she's here, we feel happiness again. There is still a tremendous sadness in our life, but Annabel is pure joy.

What would you tell other mothers who are experiencing the loss of a child?

I would first just want to hug them, and tell them that I understand and that I am so sorry. Then I would tell them to cry when they need to. It's OK to laugh sometimes. Try not to feel guilty if you have a moment where you aren't feeling overwhelming sadness. You'll have days where you can only lay in bed and cry, and there will be other days where you physically cannot cry anymore. And I would tell them that they have to keep on living — that their child now lives on through them, and they are still mothers no matter if they have other children or not. You are still parenting your child, just in a very different way. There are a lot of support groups out there, and they should know that even though grief is horrible and isolating, they aren't alone.

Content last updated May 1, 2010.

Interview contents copyright © 2010, Heather Spohr.

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