Karen Petersen
Karen Petersen is the daughter of a member of the armed forces and was born in Nuremberg, Germany. She currently resides in Southern Arizona where she has lived most of her life. She received a GED for high school completion but was determined to have an education. She achieved an Associate's Degree in microcomputer applications with an almost perfect GPA! She loves the outdoors and spends her spare time camping, kayaking, and hiking. She considers nature to be the most beautiful part of her life. She has done a variety of speaking engagements on HIV. Her friends and family say her greatest attribute is her loving and compassionate heart.
Related information
- National Women and Girls HIV/AIDS Awareness Day – March 10
- Women and HIV/AIDS
- Act Against AIDS (from the Centers for Disease Control and Prevention)
- AIDS.gov
- H1N1 and HIV (from AIDS.gov)
- Know Your Status – Find an HIV Testing Site (from the Centers for Disease Control and Prevention)
Please read our disclaimer regarding this interview.
Interview With an HIV-positive Woman: Karen Petersen
Like many women, Karen Petersen thought being on birth control was the only protection she needed when she was having sex. Years later, she was diagnosed with HIV. Now, having lived with HIV for 17 years, she shares her story with us in the hopes of reaching HIV-positive women and those who still believe HIV is a homosexual disease.
How many years have you been living with HIV?
I have been living with HIV/AIDS for over 17 years now and holding strong! In all those years, I have been hospitalized only three times and all were non-HIV related.
How did you find out that you were HIV-positive?
I was misdiagnosed with hepatitis B. Because hepatitis B is a sexually transmitted disease like HIV, my doctor wanted me to get an HIV test too. It took me a while to get the test and the results. I was shocked when the people at Planned Parenthood told me I was HIV-positive. That was well over 17 years ago.
How did finding out you were HIV-positive change your life?
It took me a couple of months to fight through the depression and I even contemplated taking my life. I felt as though the blackboard of my life had been erased. Everything I had planned — husband, kids, and dreams — were all up for reevaluation. I didn't think anyone would want to be around me. I was terrified what others would think. I feared more for life than death until I went to my first women's group where I saw women who were much sicker than me, yet looked great! I got educated and, through trial and tribulation, I rebuilt myself. I have since experienced a 15-year marriage. I helped raise 2 stepchildren and have grandchildren! God works in mysterious ways. It changed my life in a positive way by bringing me a greater awareness of what is important — friends, family, and nature. Now, I live!
Do you know how you contracted HIV?
I believe I contracted HIV through heterosexual sex about 8 to 10 years before I was diagnosed. At the time, I was taking birth control. It didn't even occur to me to use a condom. I felt as though I was protected and since I wasn't a homosexual, I wasn't at risk. Little did I know the risk I was taking. I protected my ability to choose to bring another life into the world, but neglected to care for my own life.
How did you tell your family and friends about your HIV-positive status and how did they react?
After my diagnosis, my first contact with family was with my stepmother. She was very loving and comforting. Then I talked with my father; he was just in shock. I will never forget that "gut wrenched" look on his face. They both tried to help me find literature and resources. I told my boyfriend and he was very supportive but had to let me go for a couple of months because I chose to live in the illness every moment. He and I actually got married later. I chose to be very selective in telling people in my circle by testing the waters slowly. Anyone I did not trust had to wait awhile. I felt it was my obligation to protect not only myself but my family and friends from the ignorance and ridicule of others who didn't know all the facts of HIV transmission. Overall, all the friends and family I have chosen to tell over the years have been very supportive. I am so blessed.
Do you think the stigma of AIDS and HIV has changed since you were first diagnosed?
I think the stigma has changed some as far as acceptance. More friends and people that I come in contact with aren't afraid of me. Most people know you can't contract it with casual contact. Unfortunately, I believe the stigma about the disease being homosexually-based still exists. Some of my friends would be scared to get tested in fear that they would be thought of as gay. And unfortunately, some organizations are perpetuating that image by focusing too much effort in that one area.
What do you do now to spread a positive image about living with HIV?
I try my best to get the word out. I speak publically, "outing" myself a bit more. I take every chance I can to put my face with the illness because, as an HIV-positive woman, I believe I am anyone. I even created an avatar named "IAmAnyone" on a virtual reality website to try and inform people about HIV. I have fought to get more programs that are heterosexually-based so that people with fears can be comfortable expressing themselves openly.
We live in a voyeuristic society and we are not seeing enough about HIV in the United States. That scares me. It's spreading and yet we are not seeing enough.
Are you involved in any community organizations that do HIV support or outreach?
Absolutely! El Rio Special Immunology and Dr. Kevin Carmichael have kept me alive with all their support! Positively Beautiful, founded and led by Dr. Heather Moroso, has helped me maintain my energy and self esteem! Karyl L. Williams at the Congress Clinic gave me the inner strength to keep moving forward!
What do you do to keep yourself healthy?
I try my best to eat right. I told myself a long time ago that I was not going to go to extremes with ultra healthy food and fads. I rest. I take my medicine and see my doctor on a regular basis. I spend time with my friends and my family. I enjoy nature as much as possible. The most important thing to being healthy is watching my stress level and managing it. Stress is the one thing I have found that can put me down.
What do you tell women that have recently been diagnosed with HIV?
There is hope. You can live a very long time and be healthy and happy! If I can do it, you can too! Be proactive and get into a group. It truly helps to know that you aren't alone.
I have been blessed with having 2 wonderful HIV-negative men in my life in the last 18 years; my ex-husband, and now my boyfriend. They have known me from day one and have accepted me and my illness. They are true men. And girls, there are many more out there!
Content last updated March 1, 2010.
Interview contents copyright © 2010, Karen Petersen.
womenshealth.gov
A federal government website managed by the Office on Women's Health in the Office of the Assistant Secretary for Health at the U.S. Department of Health and Human Services.
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