womens health dot gov
A project of the U.S. Department of Health and Human Services Office on Women's Health
Call Us! 800-994-9662 • TDD 888-220-5446 • Monday-Friday 9 a.m.–6 p.m. (EST)

Skip Navigation

A project of the U.S. Department of Health and Human Services Office on Women's Health
Página inicial en español
womenshealth.gov

Empowering women to live healthier lives!

Call Us! 800-994-9662 • TDD 888-220-5446
Monday–Friday 9 a.m.–6 p.m. (EST)
News
divider line
Carolyn Thomas
Carolyn Thomas
Inside the interview

Carolyn Thomas has worked in communications, journalism, and public relations for over 30 years. She has many years of experience in public relations representing organizations as diverse as Mercedes Benz and the Salvation Army. Carolyn began blogging in 2008 and writes a women's heart health blog, Heart Sisters, which offers information about heart disease and women. She also blogs about ethical questions associated with journalistic integrity on The Ethical Nag: Marketing Ethics for the Easily Swayed. Carolyn was inspired to write Heart Sisters after she learned that many doctors still consider heart disease to be a men's health issue. She was named "Women's Health Hero" for 2009 by Our Bodies Ourselves, and is a "WomenHeart Champion." She currently lives in Victoria, British Columbia.
Carolyn's mother Joan, Carolyn, and Carolyn's daughter Larissa
(Left to right) Carolyn's mother Joan, Carolyn, and Carolyn's daughter Larissa. Photo taken two days before Carolyn was hospitalized with a heart attack.

Related information

Please read our disclaimer regarding this interview.

Interview With a Heart Disease Survivor: Carolyn Thomas

In May 2008, shortly after turning 58, Carolyn Thomas suddenly became a member of a club that nobody ever wants to join by suffering a heart attack. Now a champion for women's health, she uses the heart attack to make women aware of their own bodies and the importance of prevention. Read her interview to learn how she turned her life around and what she's doing now to stay healthy.


What was your life like before you were diagnosed with heart disease?

I had a great life! I ran a disaster response program for the Salvation Army, did street outreach to feed the homeless, and worked as the communications coordinator at a hospice care facility. The year before my heart attack, I decided to downsize to a little condo in a beautiful, leafy neighborhood. For the first time ever, I was able to afford a major home renovation.

Tell us a little about the events leading up to your diagnosis. What did you experience?

I was walking to work in 2008 when suddenly, out of the blue, I felt crushing chest pain, waves of nausea, sweating, and pain radiating down my left arm. It was this left arm pain that frightened me because I remembered hearing something about arm pain being a symptom of a heart attack! Terrified, I went immediately to the emergency room, but all of the cardiac tests — EKG , blood tests, even a treadmill stress test — came back "normal." The doctor told me that I just had a case of acid reflux and that I should go see my family doctor for an antacid prescription. The next 2 weeks revolved around my reluctance to "make a fuss" over what was happening to me. I continued to experience painful episodes exactly like that first attack: frightening chest pain, nausea, sweating, and arm pain. Two weeks of increasingly debilitating attacks later, I knew I was in serious trouble and needed to go back to the emergency room.

How were you diagnosed with heart disease?

My second visit to the emergency room was entirely different than my first, 2 weeks earlier. This time, I could tell just by the alarmed looks on the faces of the staff as they scurried around me that something was seriously wrong. Within minutes, a cardiologist was called in, who told me that he could tell from the EKG, and other preliminary test results that I had had a "myocardial infarction" (heart attack) and that I clearly showed "significant heart disease." I was taken immediately from the emergency room to the operating room for emergency surgery, and a stainless steel stent was implanted into one of my arteries, which was 99 percent blocked.

Did being a woman affect your diagnosis and hospital experience?

I believe so. In my opinion, many women still mistakenly consider heart disease to be a man's problem, and so do some doctors. Even I could not quite believe I was having a heart attack, because of my misconception that a "real" heart attack was like cardiac arrest: clutching the chest, keeling over unconscious, CPR, 911, and paddles. That's what I thought a heart attack was, but apparently not many women experience that. The first doctor I met in the emergency room sized me up very quickly, reviewed my "normal" cardiac test results, and let me go instead of keeping me for observation in the hospital.

Five months after my heart attack, I attended the annual WomenHeart Science & Leadership Symposium for Women With Heart Disease at Mayo Clinic in Rochester, Minnesota. At Mayo, I met dozens of survivors who had also been sent home despite heart attack symptoms. One woman told me that she had been sent home three times despite her severe symptoms. On the third visit, the doctor suggested she might want to consider taking anti-depressants. Her fourth visit was for double bypass surgery.

What lifestyle changes did you make to improve your health?

I started cardiac rehabilitation as soon as I was physically able to after my heart attack, twice a week, 2 hours at a time, for 3 months. The wonderful folks at our Mayo Clinic Symposium gave each of us a pedometer. My goal is to walk 10,000 steps per day. I even have a little exercise calendar where I give myself stickers every day that I do my 10,000 steps. Those stickers really work!

The biggest change came in my kitchen. My lovely daughter Larissa flew in from out of town immediately after my hospitalization and her first mission was to go through kitchen cabinets and the fridge. She tossed out every single item that had too much salt, sugar, or fat, or not enough fiber or natural ingredients. The whole family became obsessive label readers.

I have also had to make drastic changes in my stress levels. At Mayo Clinic, we were taught many relaxation strategies like Tai Chi, Pilates, and meditation. For the first time in my life, I had to learn the art of pacing throughout the day, with lots of planned rest periods in between outings. I now carefully weigh each social invitation, each calendar booking, asking myself, "Is this what I really want to be doing right now? Is this who I really want to be doing it with?" I finally understood the wisdom of that saying: "Don't Sweat The Small Stuff" — and let's face it, it's mostly all small stuff.

Have you changed in any other way since learning you have heart disease?

The most traumatic change in my lifestyle has been around my career. I returned to work, half days only to start, about 3 months after my heart attack. I had felt desperate to get back to my job, to finally feel "normal" during a time when nothing felt normal anymore. At first, it was lovely to be back, with lots of "So glad you're back!" hugs from my colleagues — followed almost immediately with a 3-month-high pile of overdue projects they'd been waiting for me to get done while I was on medical leave. But by the second week at work, I knew something was terribly wrong. I could not seem to cope with the stress, pressure, deadlines, and juggling of multiple projects (all due yesterday) that are just part of everyday normal life in public relations. I had trouble remembering even the most basic facts at work. I was unable to focus or make simple decisions. I began weeping for no reason, and seemed unable to stop. And worse, my ongoing chest pains, shortness of breath, and crushing fatigue convinced me that a second heart attack was imminent. I didn't recognize it at the time, but I was severely depressed. Luckily, my physician was very supportive and quick to offer immediate help. She also ordered me off work on extended medical leave to give me some time to really heal.

Even the clinical diagnosis of "depression" had a profound effect on me. In my opinion, I was certainly never the type of person to be depressed. In fact, I'm embarrassed to admit that through sheer ignorance, I used to make disparaging remarks about those with depression — if only they would just "pull up their socks" and get on with it, they'd feel better! How humbling to find myself suddenly among them.

What do you think women don't know about heart disease? What should they know?

I suspect that most women are unaware that heart disease is their number 1 killer and that heart disease kills more women than men each year. Also, at Mayo Clinic I learned that heart disease takes 20–30 years to develop. It's so important to reach young women, especially with information on risk factors that will result in heart disease decades from now. These factors include things like high blood pressure, high cholesterol, chronic stress, inactivity, diabetes, and smoking. Woman can make the simplest and most profoundly effective preventive measures, such as:

  • Getting regular physical exercise
  • Eating low-salt, high-fiber, low trans-fat foods
  • Stopping smoking

What is one piece of advice you'd give women regarding their health?

Be your own best health advocate! You know your body. You know when something is not right. Pay attention to that little voice that says "something is wrong with me." I ask myself, what would I have done had it been my daughter Larissa having those symptoms of crushing chest pain, sweating, nausea, and pain radiating down her left arm for those 2 long weeks? Would I have just patted her on the head and reminded her that the doctor says it's nothing to worry about? I wouldn't. So why would I not demand the same quality care for myself?

Do you consider yourself a "heart disease survivor?"

Of course! But it wasn't until I spent 5 days at Mayo Clinic last October that I finally "got it." Heart disease is a long-term disease that can take time to develop. Doctors can patch us up, defibrillate us, bypass us or stent us, or put in a new valve or pacemaker, but unlike short-term illnesses, our treatment does not cure what caused the disease in the first place. Having a previous cardiac event is the biggest risk factor in having another one. That's a sobering thought and one that makes those lifestyle improvements even more important for survivors than for all other women.

What do you do to promote heart disease awareness?

Since returning from Mayo Clinic, I have done community presentations about women's heart health to thousands of women, including at my signature "Pinot & Prevention" parties. But probably the most surprisingly successful development in promoting heart health awareness has been Heart Sisters, my blog about women and heart disease, which I launched in April 2009. Because of these public awareness initiatives, I was named last year by Our Bodies Ourselves in Boston as one of their "2009 Women's Health Heroes" — one of 20 inductees honored for community activism in promoting women's health.

Tell us a little about what you like to do. What sort of hobbies do you have?

I love walking with my friends (and my pedometer!) followed by our regular coffee visits! I now volunteer weekly in the Cardiac Resource Library, helping both patients and their families with information about cardiac procedures they are either facing or are recovering from. I am an amateur jewelry maker, and I also love making handmade greeting cards for family and friends. And I've also become a bit obsessed with heart-smart recipes now. I love finding creative ways to do healthy makeovers of our old family favorites, like my now-famous Heart-Smart Chocolate Fudge Brownies!

Content last updated February 1, 2010.

Interview contents copyright © 2010, Carolyn Thomas.

Return to top


womenshealth.gov
A federal government website managed by the Office on Women's Health in the Office of the Assistant Secretary for Health at the U.S. Department of Health and Human Services.
200 Independence Avenue, S.W. • Washington, DC 20201