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National Niemann-Pick Disease Foundation

Mission Statement

Our primary goals are to: Promote medical research into the cause of NPD in order to eventually find a cure; Provide medical and educational information to assist in the correct diagnosis and referral of children with NPD; Provide support to families of NPD patients; Facilitate genetic counseling for parents who are known carriers of NPD; Encourage the sharing of research information among scientists; Support legislation that positively affects patients and families with NPD.

Contact Information

National Niemann-Pick Disease Foundation
PO Box 49, 401 Madison Ave Suite B
Ft. Atkinson WI 53538

Phone: 920-563-0930
Toll-free Phone: (877) 287-3672 (CURE-NPC)
Fax: 920-563-0931
Website: http://www.nnpdf.org/index.html

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