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Ehlers-Danlos National Foundation
Mission Statement
Nancy Hanna Rogowski created the Ehlers-Danlos National Foundation (EDNF) in 1985. The primary goal of EDNF is to provide emotional support and updated information to those affected by Ehlers-Danlos syndrome and to their family members. In addition, EDNF serves as a vital information link to and from the medical community. It is our desire to inspire and support research in the field of connective tissue disorders-specifically Ehlers-Danlos syndrome.
Contact Information
Ehlers-Danlos National Foundation
3200 Wilshire Blvd Suite 1601, South Tower
McLean VA 22102
Phone: 703-506-2892
Fax: 703-506-3266
Website: http://www.ednf.org/
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