The Cystinosis Foundation is an all volunteer, non-profit organization dedicated to providing services for those suffering from cystinosis by supporting parents with information and referrals, newsletters and Foundation sponsored conferences; educating the medical profession and the general public about this rare disease through receptions at medical meetings, the media and distribution of literature; raising funds to promote research on causes and treatments of cystinosis. The Foundation is a member of the National Organization of Rare Disorders (NORD), which furthers the cause of those with rare diseases and the Alliance of Genetic Support Groups.
58 Miramonte Drive
Moraga CA 94556
Toll-free Phone: 888-631-1588
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