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Cystinosis Foundation
Mission Statement
The Cystinosis Foundation is an all volunteer, non-profit organization dedicated to providing services for those suffering from cystinosis by supporting parents with information and referrals, newsletters and Foundation sponsored conferences; educating the medical profession and the general public about this rare disease through receptions at medical meetings, the media and distribution of literature; raising funds to promote research on causes and treatments of cystinosis. The Foundation is a member of the National Organization of Rare Disorders (NORD), which furthers the cause of those with rare diseases and the Alliance of Genetic Support Groups.
Contact Information
Cystinosis Foundation
58 Miramonte Drive
Moraga CA 94556
Phone: 559-222-7997
Toll-free Phone: 888-631-1588
Fax: 559-222-7997
Website: http://www.cystinosisfoundation.org/
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